I am an anthropologist, writer, and disability researcher based in Austin, Texas. I have extensive training and experience in qualitative methods, ethnographic writing, editing, and the social study of disability and health. As a scholar, I am committed to producing research that has a real-world impact. I am particularly interested in emerging digital platforms that bring scholarly writing to broader audiences, both academic and otherwise.
As an anthropologist, I use ethnographic research to study daily life, practices, and beliefs. My research focuses on disability, a universal yet curiously overlooked facet of the human experience. I have conducted ethnographic research on disability at various sites in the U.S. and Central America, as well as an innovative digital study of disability and social media. For my dissertation, I conducted over 18 months of ethnographic fieldwork on family experiences with rare and undiagnosed disabilities. I have worked, studied, and volunteered on four continents, plus a tiny island in the middle of the Pacific Ocean. I have an M.A. from the University of Chicago and a B.A. from Carleton College.
My interest in disability is intellectual, professional, and personal, and connects closely to my experiences having a younger sister with CHARGE syndrome, a rare genetic condition. CHARGE was discovered only a few years prior to my sister’s birth, and she was undiagnosed for most of our childhoods. I remain fascinated by such living experiments in diagnostic identity, and I believe that my personal experiences and academic research can help generate new understandings of the dynamic nature of disability.